We’ve been investing in scientific research since 1990

01 / 01

We've funded more than 3000 projects and 1700 researchers to give people affected by a rare genetic condition a new hope.

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Our method

How we fund research?

698 Millions of euros invested
1.771 Researchers
3.024 Projects funded

What we do

Our mission

We were made to give people affected by a rare genetic condition an answer – treatment for their condition. Rare genetic conditions are not statistically relevant when considered individually, but the same can’t be said about a person’s life.

Projects funded

We support the best projects chosen using a rigorous and transparent selection process, following consultation with an internationally-renowned committee of qualified scientists.

Institutes

We have founded two institutes that are global centres of excellence in the study of rare genetic conditions: The San Raffaele Telethon Institute For Gene Therapy in Milan and Telethon Institute of Genetics and Medicine in Pozzuoli (NA).

Lorenzo wants to go far

Patients

“I can’t walk”. When you hear those words on the lips of a child below the age of three, it’s hard to turn your back and walk away. Imagine you’re the child’s parents. The words came out with the composed calmness of a fact of nature.

News

Read all the news

05.09.24

ERC Funding, European Research Council: 1.5 million euros each awarded to the projects of three young researchers from Telethon Institutes

Fondazione Telethon has announced that ERC, the European Research Council, has awarded three researchers from the Telethon Institutes three grants of EUR 1.5 million each for five years. Specifically, the three researchers are Samuele Ferrari and Attya Omer from the San Raffaele-Telethon Institute for Gene Therapy (SR-TIGET) in Milan and Ivana Trapani from the Telethon […]

From Telethon Foundation

10.07.24

Fondazione Telethon Board of Directors chaired by Luca di Montezemolo appoints Ilaria Villa as new Managing Director

Fondazione Telethon Board of Directors chaired by Luca di Montezemolo appoints Ilaria Villa as new Managing Director. Francesca Pasinelli leaves her executive roles but will remain on the Board of Fondazione Telethon.

From Telethon Foundation

15.04.24

New leadership at TIGEM: Alberto Auricchio appointed as director at the Telethon Institute of Genetics and Medicine in Pozzuoli (NA)

A new chapter in a 30-year history: passing on the torch is Andrea Ballabio, who directed the Institute since its foundation in 1994.

From Telethon Foundation

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