17.12.22
Margaux discovering the world thanks to gene therapy
She was the first Belgian girl with the rare immunodeficiency ADA-SCID treated with the gene therapy approach developed by Telethon researchers. From the risk of a life of seclusion, she has conquered the possibility of doing whatever she likes.
31.05.22
In Italy for love and by choice
The story of Attya and her personal and professional journey that took her to the San Raffaele Telethon Institute for Gene Therapy in Milan.
10.10.19
Lorenzo wants to go far
“I can’t walk”. When you hear those words on the lips of a child below the age of three, it’s hard to turn your back and walk away. Imagine you’re the child’s parents. The words came out with the composed calmness of a fact of nature.
10.07.24
Fondazione Telethon Board of Directors chaired by Luca di Montezemolo appoints Ilaria Villa as new Managing Director
Fondazione Telethon Board of Directors chaired by Luca di Montezemolo appoints Ilaria Villa as new Managing Director. Francesca Pasinelli leaves her executive roles but will remain on the Board of Fondazione Telethon.
15.04.24
New leadership at TIGEM: Alberto Auricchio appointed as director at the Telethon Institute of Genetics and Medicine in Pozzuoli (NA)
A new chapter in a 30-year history: passing on the torch is Andrea Ballabio, who directed the Institute since its foundation in 1994.
28.02.24
Fondazione Telethon announces commitment to make gene therapy for Wiskott-Aldrich syndrome available to patients
On the eve of the 26th World Rare Disease Day, Fondazione Telethon announces its commitment to ensure that gene therapy for Wiskott-Aldrich syndrome (WAS), a rare genetic disease of the immune system, will be available in the next future.
